TEXAS STROKE E-RESOURCE CENTER
Background
Stroke is the 3rd leading cause of death in Texas and a leading cause of adult disability. In 2017, the total charges for stroke hospitalizations in Texas were more than $5.3 billion,with Medicaid beneficiaries accounting for over $308 million of these charges. Stroke has significant disability with up to 50% of survivors being chronically disabled. Stroke survivors, caregivers and their families face daily challenges as they learn to navigate life post stroke. Understanding what caused their stroke, how to prevent recurrent stroke, choosing a rehabilitation program, adaptive equipment, return to driving and work- are just a few issues stroke survivors and caregivers face. There are a variety of resources that address these needs but navigating the system can be difficult. Given the stroke burden in Texas and the needs of our stroke survivors and caregivers, we have created the Texas Stroke e-Resource Center (SRC), an online, comprehensive resource program including:
Stroke is the 3rd leading cause of death in Texas and a leading cause of adult disability. In 2017, the total charges for stroke hospitalizations in Texas were more than $5.3 billion,with Medicaid beneficiaries accounting for over $308 million of these charges. Stroke has significant disability with up to 50% of survivors being chronically disabled. Stroke survivors, caregivers and their families face daily challenges as they learn to navigate life post stroke. Understanding what caused their stroke, how to prevent recurrent stroke, choosing a rehabilitation program, adaptive equipment, return to driving and work- are just a few issues stroke survivors and caregivers face. There are a variety of resources that address these needs but navigating the system can be difficult. Given the stroke burden in Texas and the needs of our stroke survivors and caregivers, we have created the Texas Stroke e-Resource Center (SRC), an online, comprehensive resource program including:
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We hope stroke survivors, caregivers and the community find the Texas SRC helpful to learn about stroke treatment, stroke prevention, stroke risk factors, and stroke rehabilitation as they navigate their post stroke road to recovery.
EDUCATION LIBRARY |
EDUCATION MATERIALS REQUEST |
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To learn more about stroke, check out our Education Library. Learn about stroke prevention, treatment and recovery, healthy brain behaviors and tips to keep brain smart. We also have materials on less common causes of stroke such as blood clotting disorders, stroke and pregnancy, stroke and drugs and more. Our Education Library has educational materials covering all aspects of stroke, podcasts, videos and links to educational resources. LEARN MORE
STROKE SUPPORT GROUPSStroke affects all aspects of a person's life and their caregivers. A stroke survivor's ability to walk, talk, take care of their home, drive, return to work and communicate may all be impacted. Stroke survivors and caregivers can experience depression, social isolation, financial hardships and other severe stressors.
It is critically important to stay connected to the "outside world." We encourage stroke survivors and caregivers to join a stroke support group to connect with others who understand and can guide them along the road to recovery. See our list of local stroke support groups HERE or check-out the American Stroke Association Stroke Support Group Finder. HERE 
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The resource center provides thousands of printed patient education materials per year, free of charge, to community organizations that provide services to stroke survivors, caregivers, seniors and other vulnerable populations. We also distribute these materials at health fairs and community programs.
If your organization is hosting a FREE health fair or community program that provides stroke related education and/ or free health screenings, you may request free patient education materials. Your program must be located in the Greater Houston region or surrounding areas. Due to cost restrictions, we are unable to mail materials. We can work with you on a date and time to pick up materials at our office. Please complete and submit the form below and our team will contact you within 5 business days. |
STROKE RESEARCH INFORMATION
Why participate in a research study or clinical trial?
Research is not treatment. There is no guarantee that you will benefit from participating in a study, you will help researchers better understand the problem and possibly help other people in the future.
Who can be in a study?
Each research study has clearly defined requirements for participation, which will vary depending on the topic of investigation. A member of the research team will discuss the study with you, answer your questions and tell you if you qualify as a study participant. All study participation is completely voluntary.
What questions should I ask?
You are welcome to ask the research team any questions about the study. Also, be sure to ask them the following questions:
The research team will provide you with an informed consent form with details about the study. Please read this form carefully and discuss it with your family and physician before making your decision regarding participation. If you agree to participate, you will be asked to sign this form.
Who pays for research studies and clinical trials?
Many different entities sponsor clinical research, including the federal government, industries and private foundations. Drug and medical device companies also fund research and must show that their products are safe and effective by performing clinical trials. While the sponsor covers certain parts of the research study, your insurance company may pay for routine care that would be necessary regardless of your study participation.
What are clinical trials?
A clinical trial is a complete investigation of a medicine or a medical device by the Food and Drug Administration to ensure it’s safe and effective before it’s released to the public. Some clinical trials could benefit stroke survivors. Clinical trials are based on a set of rules called protocols, which describe eligibility, test schedule, procedures and medications, and study length. Participants are seen regularly by the research staff to monitor their health and to determine the safety and effectiveness of the treatment. Participants may decline to be a part of the trial or withdraw from it at any time
What happens to the information I provide to researchers?
All information about you and your participation in a research study is private and confidential. If you would like to learn the results of the study, please ask the research team to send you its findings following completion of the trial. In some instances, the sponsor or a governmental agency, such as the Food and Drug Administration, may have the right to confidentially review your information.
What are my rights if I participate? How am I protected?
An important part of research is protecting the people who choose to participate. Researchers and healthcare professionals must follow federal laws, ethical codes and national standards when working with human subjects. Your rights and welfare are protected by several organizations, including:
How can I participate in a stroke clinical trial?
Visit ClinicalTrials.gov. to find clinical trials near you. This is a Web-based resource that provides patients, their family members, health care professionals, researchers, and the public with information on publicly and privately supported clinical studies. see what’s a registry and results database of clinical studies of human participants conducted around the world. Stroke survivors and caregivers are encouraged to check the resource center page regularly for updates.
References
American Stroke Association
ClinicalTrials.gov
NIH.gov
Research is not treatment. There is no guarantee that you will benefit from participating in a study, you will help researchers better understand the problem and possibly help other people in the future.
Who can be in a study?
Each research study has clearly defined requirements for participation, which will vary depending on the topic of investigation. A member of the research team will discuss the study with you, answer your questions and tell you if you qualify as a study participant. All study participation is completely voluntary.
What questions should I ask?
You are welcome to ask the research team any questions about the study. Also, be sure to ask them the following questions:
- What will you learn from the study?
- What happens to me during the study?
- Will I have any unpleasant side effects?
- Will the research help me personally?
- What other options do I have?
- Can I leave the study at any time?
- What happens with the information I provide to you?
- Will my insurance pay for anything?
- Will I have to pay anything?
The research team will provide you with an informed consent form with details about the study. Please read this form carefully and discuss it with your family and physician before making your decision regarding participation. If you agree to participate, you will be asked to sign this form.
Who pays for research studies and clinical trials?
Many different entities sponsor clinical research, including the federal government, industries and private foundations. Drug and medical device companies also fund research and must show that their products are safe and effective by performing clinical trials. While the sponsor covers certain parts of the research study, your insurance company may pay for routine care that would be necessary regardless of your study participation.
What are clinical trials?
A clinical trial is a complete investigation of a medicine or a medical device by the Food and Drug Administration to ensure it’s safe and effective before it’s released to the public. Some clinical trials could benefit stroke survivors. Clinical trials are based on a set of rules called protocols, which describe eligibility, test schedule, procedures and medications, and study length. Participants are seen regularly by the research staff to monitor their health and to determine the safety and effectiveness of the treatment. Participants may decline to be a part of the trial or withdraw from it at any time
What happens to the information I provide to researchers?
All information about you and your participation in a research study is private and confidential. If you would like to learn the results of the study, please ask the research team to send you its findings following completion of the trial. In some instances, the sponsor or a governmental agency, such as the Food and Drug Administration, may have the right to confidentially review your information.
What are my rights if I participate? How am I protected?
An important part of research is protecting the people who choose to participate. Researchers and healthcare professionals must follow federal laws, ethical codes and national standards when working with human subjects. Your rights and welfare are protected by several organizations, including:
- Institutional Review Boards (IRBs)
- Food and Drug Administration (FDA)
- Department of Health and Human Services (DHHS)
- Joint Commission on the Accreditation of Hospitals (JCAHO)
How can I participate in a stroke clinical trial?
Visit ClinicalTrials.gov. to find clinical trials near you. This is a Web-based resource that provides patients, their family members, health care professionals, researchers, and the public with information on publicly and privately supported clinical studies. see what’s a registry and results database of clinical studies of human participants conducted around the world. Stroke survivors and caregivers are encouraged to check the resource center page regularly for updates.
References
American Stroke Association
ClinicalTrials.gov
NIH.gov
RESOURCE LISTING
Do you know what resources and services are available in Houston for stroke survivors and caregivers? From healthcare professionals who specialize in stroke to rehabilitation programs and discounted services, we are compiling a comprehensive list of resources we hope you will find helpful. See our Resources Listing. HERE
If you know of a resource that you would like to share with stroke survivors & caregivers, please email the information to [email protected].
Stroke Strides
A Quarterly Community Newsletter
Connecting stroke survivors, caregivers and the community. Our focus is increasing stroke awareness and knowledge, providing stroke education, updates on stroke research and treatment and information on local resources. Provided in English and Spanish. To see all issues, go HERE.
Stroke Strides May 2020 Newsletter
Some topics in this article include:
Stroke Strides May 2020 Boletin
Some topics in this article include:
- May is Stroke Awareness Month!
- COVID-19 Keeping Patients away from Stroke Centers
- Test your Stroke Knowledge
Stroke Strides May 2020 Boletin
- Mayo es Mes de Concienciacion Sobre Ataques Cerebrales
- COVID-19 Mantiene Alejados A Los Pacientes Con Ataques Cerebrales
- Prueba tu Conocimiento Sobre los Ataques Cerebrales
STROKE & BRAIN LENDING LIBRARY - VISIT HERE
ONLINE STROKE & BRAIN HEALTH CALENDAR - VISIT HERE
This resource page provides helpful information to the local Houston community. It is not comprehensive and does not reflect an endorsement of any particular company or organization. Current information as of May 8, 2020.